| 基于多案例研究的生物医学科学数据开放共享策略分析 |
| 修订日期：2023-10-19 点此下载全文 |
| 引用本文：万佳林,贾晓峰,胡志民.基于多案例研究的生物医学科学数据开放共享策略分析[J].医学信息学杂志,2024,45(2):20-25 |
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| 基金项目:中国医学科学院医学与健康科技创新工程项目(项目编号:2021-I2M-1-057)。 |
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| 中文摘要:目的/意义 提出生物医学科学数据开放共享的策略性建议,为科学数据可持续发展提供理论支撑。方法/过程 采用多案例研究方法,分析英国生物样本库(UK Biobank)、美国国家生物技术信息中心(NCBI)、全球流感共享数据库(GISAID)、Cortellis药物研发情报平台(CDDI)4个国际典型生物医学科学数据平台的开放共享实践。结果/结论 基于数据共享前、中、后3个环节提出建议,数据资源建设方面应确定数据权利和权利主体的划分,数据开放使用方面应依据数据属性实行差异化管理,数据生态营造方面应制定促进数据增值的机制和措施。 |
| 中文关键词:科学数据 生物医学数据 数据共享 案例研究 |
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| Analysis of Open Sharing Strategies of Biomedical Scientific Data Based on the Multiple-case Study |
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| Abstract:Significance To put forward strategies for the open sharing of biomedical scientific data and provide theoretical support for the sustainable development of scientific data in China. Method/Process The paper adopts the multiple-case study method to analyze open sharing practices of four international typical biomedical scientific data platforms, including UK Biobank, National Center for Biotechnology Information (NCBI), Global Initiative on Sharing All Influenza Data (GISAID) and Cortellis Drug Discovery Intelligence (CDDI). Result/Conclusion Suggestions are proposed based on three processes of before, during and after data sharing. In the construction of data resources, the division of data rights and rights subjects should be determined. The open use of data should be differentiated according to data attributes. In terms of data ecology construction, mechanisms and measures to promote data value-added should be formulated. |
| keywords:scientific data biomedical data data sharing case study |
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