罕见病相关信息素养面临的问题及思考 |
投稿时间:2016-03-28 点此下载全文 |
引用本文:杨朝晖.罕见病相关信息素养面临的问题及思考[J].医学信息学杂志,2016,37(7):74-77 |
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基金项目:天津市高等职业技术教育研究会2015年课题“高职院校学生个人信息管理实践现状分析与对策研究”(项目编号:XV468)。 |
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中文摘要:简述医护人员和患者因罕见病信息缺乏导致确诊困难、检索查询信息困难等问题,提出相应措施:普及罕见病知识,建立罕见病临床信息数据库;推广罕见病信息交流网络平台;医院信息服务工作者应对工作方法和工作流程加以改进。 |
中文关键词:罕见病 信息素养 信息检索 健康信息 |
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Problems and Thinking of Information Literacy Related to Rare Diseases |
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Abstract:The paper describes problems faced by doctors, nurses and patients due to lack of rare disease information, for example, difficulties in making a definite diagnosis and retrieving and searching information. It proposes relevant measures:popularizing knowledge of rare diseases, setting up a clinical information database of rare diseases,popularizing the online information exchange platform for rare diseases. Staff engaged in hospital information services should improve their work methods and procedures. |
keywords:Rare diseases Infrormation literacy Information retrieval Health information |
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