医学科学数据共享的理论逻辑与实践探索
作者:
作者单位:

1.中国医学科学院/北京协和医学院卫生健康管理政策学院 北京 100730 ;2.中国医学科学院/北京协和医学院基础医学研究所 北京 100005

作者简介:

杨珑平,硕士研究生,发表论文2篇;通信作者:李青。

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中图分类号:

R-058

基金项目:

中国医学科学院医学与健康科技创新工程(项目编号:2021-I2M-1-046)


Theoretical Logic and Practical Exploration of Medical Scientific Data Sharing
Author:
Affiliation:

1.School of Healthy Policy and Management,Chinese Academy of Medical Sciences & Peking Union Medical College,Beijing 100730 ,China ; 2.Institute of Basic Medical Sciences, Chinese Academy of Medical Sciences & Peking Union Medical College, Beijing 100005 , China

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    摘要:

    目的/意义 探讨医学科学数据共享的理论逻辑,分析当前实践中面临的挑战,为促进医学科学数据有效共享提供政策建议。方法/过程 首先构建医学科学数据共享的理论逻辑框架,分析其概念、特征、动因、发展规律和价值意义。其次分析我国医学科学数据共享的实践现状。最后从数据孤岛、隐私保护、责任归属和产权认定等角度分析当前医学科学数据共享所面临的挑战。结果/结论 针对性地提出建设统一数据共享平台、制定规范共享政策、构建合理激励机制和加强共享人员培训等建议,以推动医学科学数据有效共享。

    Abstract:

    Purpose/Significance To discuss the theoretical framework of medical scientific data sharing, and to analyze the current challenges faced in practice, so as to provide policy recommendations for promoting the effective sharing of medical scientific data. Method/Process Firstly, the theoretical framework of medical scientific data sharing is constructed, and the concept, characteristic, motivation, development principle, and value significance are analyzed. Secondly, the current practice status of medical scientific data sharing in china is analyzed. Finally, the challenges currently faced by the practice of medical scientific data sharing are analyzed from the perspectives of data silos, privacy protection, responsibility attribution, and property rights identification. Result/Conclusion Some targeted policy recommendations are proposed, including the establishment of a unified data-sharing platform, the formulation of standardized sharing policies, the construction of a reasonable incentive mechanism, and the strengthening of training for the personnel who work for data sharing, to promote the effective sharing of medical scientific data.

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杨珑平,刘泽坤,杨俊涛,等.医学科学数据共享的理论逻辑与实践探索[J].医学信息学杂志,2025,46(6):37-42

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  • 最后修改日期:2024-11-21
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  • 在线发布日期: 2025-07-17
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